HeroTeo - The Parkinson’s Fighter

Hi Teo, how are you faring now with the current medication? Are there any side effects so far? My mum’s got PD and has had her medication changed recently and she went downhill from there, now we’re trying to readjust but the damage has been done and it has taken a huge emotional and mental toll on her, on top of the physical ‘damage’. What is ropinorol and what does it do?

Oct 22, 6:55 PM — [ Edit | Delete ] — View post “The effect of Requip (Ropinirole) medication

Tags: Discussion, General, Medication, testimonial by heroteo
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I have been with requip medication for nine months.It started with 0.25 mg increased to 12 mg daily. It helps my physical mobilty and flexibility. I feel proud that I have a right medication. After nine months” honey moon” period I have dizzinness at  all times and it lowering my blood pressure.

I have to stop it’s taking as has sideeffects on me.

I feel now better and my dizzinness subsided and gone down slowly. My blood pressure is normal.

Tags: Discussion, General, Medication, Symptoms by heroteo
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http://forum.parkinson.org/forum/viewtopic.php?t=4443

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I am confused. Lately I have dizzinness all the times after I have T.I.A (Blood Clot) recently.I have done my MRI, ECG, Heart, ENT screening by neuroglist, cardiologist and otoringologist and are fine.
My neurologist told me it is the sideeffect of the PD medication that lowering your blood level. He wrote me the following :-
“I am glad that your dizziness has subsided. Dizziness is a very common symptom among Parkinson’s patients. It needs extensive work-up, e.g. blood pressure, heart rhythm, blood tests (diabetes) and even brain scan. A common cause of dizziness among Parkinson’s patients is the medications for PD, which can lower the blood pressure. Commonly, I use fludrocortisone to elevate the blood pressure. Parkinson’s patients need regular blood pressure monitoring (lying position and standing). Dr Chew Nee Kong”.
However, after I have stopped taking my supplements my dizzinness are subsided and gone.
I worry that the dizzinness would come again as there are two different diagnosis of the syndrome.
My nutritionist told me:
The symptoms you had got such as low blood pressure, dry mouth, insomnia and fatigue are not related to supplements , but you can reduce the dose as to take one pack per day for a while if the symptoms still going on.

My question is this : Is the cause of my dizziness the result of my PD medication or is it the cause of my supplements, or both? Should my neurologist have prescribed me fludrocortisone (as claimed by him) upfront, to counter the possible effect of dizziness due to side effect of lowering of blood pressure?

Kindly advise.

Dear Mr Teo
 
Ropinirole and other dopamine agonists are good medications for PD, especially in the early stage. I have many patients who have done well with dopamine agonists monotherapy.
 
However, till today, there is no ideal medication for PD. Even dopamine agonists (or any other PD medications) can cause a drop in blood pressure (postural hypotension), which causes dizziness and fainting attacks.
 
Hope that the fludrocortisone that i prescribed you today will help bring up your blood pressure back to normal.    
 
Dr Chew Nee Kong, Kuala Lumpur.
Dear Mr Teo
 
Ropinirole and other dopamine agonists are good medications for PD, especially in the early stage. I have many patients who have done well with dopamine agonists monotherapy.
 
However, till today, there is no ideal medication for PD. Even dopamine agonists (or any other PD medications) can cause a drop in blood pressure (postural hypotension), which causes dizziness and fainting attacks.
 
Hope that the fludrocortisone that i prescribed you today will help bring up your blood pressure back to normal.    
 
Dr Chew Nee Kong, Kuala Lumpur.

Tags: Discussion, General, Medication, Nutrients, Symptoms, The value of openness, testimonial by heroteo
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As dopamine agonists Ropinirole (Requip) can have this as a side effect (dizzinness at all time) I  stop taking them i.e 6 mg Requip daily. I substitute  Lavodopa  25/100 Sinemet 2 1/2 dosages  with 2 dosage Jumax 5mg daily immediately.

As the result my dizzinness has subsided slowly. My blood pressure  is normal.

Teo Kim Hoe

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dizzinness and parkinson’s medicationhttp://forum.parkinson.org/forum/viewtopic.php?t=4489

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http://forum.parkinson.org/forum/viewtopic.php?t=4443

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parkinson’s medication and blood pressure

Posted: Fri Apr 18, 2008 6:13 am Post subject: Parkinson’s medication and Blood pressure

Dear Doctor, I am taking Lavodopa,Carbidopa and dopamin agonist for two year Close monitoring is required for people with certain medical condition. After I have a minor stroke (T.I.A) recently, I experience two different blood pressure i.e. decreased blood pressure when rising from a seated position or lie-down on bed after lengths of times. I feel dizziness on standing,headache or fainting My mouth run dry and thirsty Insomnia, anxiey, and fatigue, malaise Kindly elaborate Thanks TEOKIMHOE
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Apr 20, 2008 7:05 pm Post subject:

There are many potential reasons for orthostasis or dizziness on standing up. Dopamine agonists and TCA antidepressants can have this as a side effect. Alternatively it could be an issue of hydration and you may need 6-8 glasses of water a day and compression stockings. Occassionally drugs like midodrine, florinef and mestinon are needed to keep the BP up._________________Michael S. Okun, M.D.
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Anonymous
Posted: Sun Apr 20, 2008 9:47 pm Post subject:

Normal blood pressure is regulated by specific reflexes in the nervous system. Parkinson’s disease can impair this reflex mechanism and result in lowered blood pressure.Low blood pressure usually presents itself as side-effect of anti parkinson’s medications. Levodopa-carbidopa, dopamine agonists and other antidepressions and sleeping medications may potentiate a hypotensive event Source: Linda P.Miller,R.N.Med Posted by Hero Teo at 10
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Anonymous
Posted: Sat Apr 26, 2008 2:16 am Post subject: dizzinness and parkinson’s medication

I am glad that your dizziness has subsided. Dizziness is a very common symptom among Parkinson’s patients. It needs extensive work-up, e.g. blood pressure, heart rhythm, blood tests (diabetes) and even brain scan. A common cause of dizziness among Parkinson’s patients is the medications for PD, which can lower the blood pressure. Commonly, I use fludrocortisone to elevate the blood pressure. Parkinson’s patients need regular blood pressure monitoring (lying position and standing). Dr Chew Nee Kong, Kuala Lumpur.
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Apr 27, 2008 8:48 am Post subject:

Thanks for the nice comment._________________Michael S. Okun, M.D.

As dopamine agonists Ropinirole (Requip) can have this as a side effect (dizzinness at all time) I  stop taking them i.e 6 mg Requip daily. I substitute  Lavodopa  25/100 Sinemet 2 1/2 dosages  with 2 dosage Jumax 5mg daily immediately.

As the result my dizzinness has subsided slowly. My blood pressure  is normal.

Teo Kim HoePosted by Hero Teo at 8:

Tags: Discussion, Exercise, General, Medication, Symptoms by heroteo
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osted: Wed Apr 23, 2008 7:00 am Post subject: T.I.A (blood cloth) and dizzinness

I have a T.I.A (minor stroke) recently. Lately I feel dizzinness. Is it related with Parkinson’s medication or my supplements? I do complete heart check and screening but I am still healthy. Your early reply woulld be appreciated
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Dr. OkunJoined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sun Apr 27, 2008 7:29 am Post subject:

Dizziness can be seen as a side effect or dopamine agonists and also felt as a subjective sensation by some PD patients. Often however it is unrelated to the PD. I would suggest you speak to your doc and be sure the stroke/TIA was not the cause…or maybe medications started after the stroke/TIA._________________Michael S. Okun, M.D.
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Tags: Discussion, Exercise, General, Medication, Symptoms by heroteo
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Re: your life long sentence

Received:

Jan 30, 2008 12:20AM

From:

auntique

Mouth/throat: moderate

Arms: moderate

Chest: mild

Legs: moderate

See profile

auntique
tremor onset: 03/95
Dx: 12/95
Type: Inherited (genetic) Parkinson’s disease

Previous message:

Teokimhoe,

I certainly hope I did NOT mislead you.  We will be compiling a book of many stories about living with PD from many different people. As such, we will not be making one book from your story, with your permission we will INCLUDE your story in the book by many people. 

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