HeroTeo - The Parkinson’s Fighter

Chronicles of A Parkinson’s Fighter

[ My Book ]

[ Book Review ]

[ Order Form ]

[ My Exercise Videos ]

Parkinson’s is not the end

Saturday, December 29, 2007

Hello I am interested in your articles also your country you live in. I have a Daughter-inlaw who is Asian she comes from China lived in Shanghi. I like your post on exercises for the face as I too have that mask like face.I used to smile a lot now I don’t, or if I do no one sees it. I should wear a shirt that says I AM SMILING. How did you learn so much having been diagnosed for only a year. I did not know a thing about Parkinson’s till I was diagnosed then I went to the local Medical Library and read as much as I could. Sorry to say I was really sick at first so do not retain what I read as well as I should. Please feel free to contact me. Click the letter across from my post in Patients. Deeann

Parkinson’s Medication

Saturday, December 29, 2007

teokimhoe, You seem very intelligent, and very experienced with PD. Please help me with these questions. Please tell me what you think of the vitamins, minerals, herbs that I am listing??? Do these ones help to slow or stop parkinson’s disease???Co-Enzyme Q-10-(1,200-mg per day)Vitamin E-(400-IU-per day)Vitamin C-(1,500-mg per day)Folic Acid-(400 mcg per day)Ginkgo Bilboa-(120-mg per day)Zinc-(15 mg per day)Flaxseed Oil-(Omega 3 Fatty Acids)-(1,200 mg per day)Lecithin-(1,200 mg per day)Selenium-(75 mg per day)Calcium-(1,500 mg per day)Magnesium-(750 mg per day)PhosphorousPotassiumAspirin-(81 mg per day)((Powerful Multiple Vitamin With Vitamin B Complex,Lycopene-(10 mg per day),lutein-(950 mcg per day),Quercetin-(12.5 mg per day)))Pomegranate Extract-(40 mg per day)Pycnogenol_(50 mg per day)Reveratrol-(40 mg per day) Tumeric-(450 mg per day)Echinacea-(1,140 mg per day)Acetyl-L-Carnitine-(500 mg per day)Alpha Lipoic Acid-(200 mg per day)Huperzine-A-(50-mcg per day)Phosphatidylyerine-(100 mg per day)Cinnamon Powder and Bark-(250 mg per day)Grape Seed Extract-(100 mg per day)Bluberry-(350 mg per day)N-Acetyl-L-Cysteine-(600 mg per day)L-Arginine-(500 mg per day) Please give me your experienced opinion on these?????? Thanks!Kirk

Dear Kirk,The answer you have to go for blood test on antioxident ,vitamins and mineral and the doctor would prescribe medicine to topup your level. Best regardsKimHOe

Is exercise harmful? Can exercise worsen PD progression

 Dec 26, 2007 5:13 am Post subject: Is Exercise harmful? Can Exercise worsen PD Progression?

I am a patient suffering from Stage II Parkinson’s Disease. I am 68 years old. Lately I have been feeling fatigue, particularly in the regions of my eye and head. Generally I feel tired and sleepy throughout the day. I would like to know whether my exercise regime is bthe cause of my fatigue, and if so, whether my exercise is excessive or optimum. Furthermore, I would like to know, whether the level of exercise I am doing is harmful and worsens my PD progression. I generally workout in the gym for six days in a week, and most of them up to an aggregate of three hours each day. My exercise schedule consists of an hour of Hatha Yoga, two hours of Personal Training with my personal trainer, which includes cardio activities on the treadmill, cross trainer, bicycle, and kick boxing. Sometimes I may substitute the personal training sessions with aerobic classes of “BodyCombat” , a kick boxing class, which includes moves from taichi, muay thai and side and front kicks, japs and jumps, and spinning classes, a cycling class. Sometimes I may even do a group exercise toning class, Bodypump, which involves the carrying of weights targetted at each part of the body. Each of these classes are for a duration of one hour each. All in, I generally workout up to three hours each day, sometimes more, for six times a week. Sunday is my rest day. All in I put in about 18 hours a week on workouts. Given the above information, is my exercise regime excessive? Is it harmful to my physical and mental well being? Most importantly, does it worsen my PD progression directly or indirectly. I am currently taking Requick (6 tabs (2 mg) per day) and Sinemet (3 tabs (25/100) per day). I am also taking “anti-oxidant” supplements, consisting of multi-vitamins and minerals, prescribed by the medical practitioner at Bumrungard Hospital at Bangkok. Does the above presciption in any way, cause my feeling of fatigue? I would be grateful if you could enlighten me on the issues raised herein. Yours sincerely Teo Kim Hoo
Back to top

Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Thu Dec 27, 2007 10:30 am Post subject:

Each person has a different tolerance level, different fitness level, and different levels of cardiovascular fitness. So what is excessive for you may not be excessive for another person. In general, I advocate at least 1 hour per day of exercise. You far exceed that. But maybe you are more fit than the average person? If you find yourself tired all the time, it couls be a sign that your exercise is excessive. Try cutting back to 2 hours per day and see if you feel better with that. In general, I advocate aerobic exercises over strength training. Aerobic exercises are better for your heart and better for your PD. In general, “the heavier” the exercise the better. But there is an important caveat to this: heavier is better as long as it is safe and your body (especially your heart) can tolerate it. Exercise is great for PD! Yours,_________________Hubert H. Fernandez
Back to top
Wow,that is an impressive workout, You may want to discuss this with your doctor if this has only recently occurred,maybe your medication needs adjustment ,does your doctor know about all of your non prescription medications? All the reading I have done clearly comes down on the side of exercise having enormous benefit to Parkinsons expecially in terms of seeming to delay progression and lessen symptoms,it also benefits mental health. It is possible you may be overtraining,consider decreasing your intensity for a week and taking more rest,such as simply lying down with a book for 15-20 minutes.Good luckbrowncat8

In general moderate exercise is beneficial. The results come in the long run. Immediately after exercising you may feel worse. I know a man from the NPF forum who has had PD for 32 years and still runs marathons(26miles).Jack

Is Exercise harmful? Can Exercise worsen PD Progression?

Mr Teo’s fatigue is mainly caused by excessive physical exertion. It is good to remain physically active when you have PD, but I think Mr. Teo is overdoing it. Dr Chew Nee Kong

Joined: 19 Jan 2007Posts: 251Location: University of Florida
Posted: Sat Dec 29, 2007 10:51 am Post subject:

Thanks for the follow-up. It is hard to know where the line is with too much exercise and that is why regular discussions with your doctor can be helpful to define the best levels!_________________Michael S. Okun, M.D

i am a 54 y/o female weight 113lbs i want to try TAI CHI . DO you think it would be better than just aerobic exercise? I do brisk 3-5 miles walking 6 days a week, and will continue. wOULD the Tai chi help my balance? Do you feel that exercise helps to retard the progression of PD? one last query……if u could only spend 1 hour a day to exercise …..what routine would you chose? MANY THANKS FOR YOUR TIME! REGARDS, BAMBI
Back to top

Dr. FernandezJoined: 20 Jan 2007Posts: 90
Posted: Sat Jan 05, 2008 11:30 am Post subject:

There are several studies on Tai Chi right now looking at whether it can improve PD and balance in PD…I am hopeful. I think it does help. Techinically or scientifically, the different forms of exercise have not been compared head to head so it is difficult to say which type of exercise is superior. Anyone claiming superiority would just be blowing off hot air, and basing in on theory rather than actual findings. And you know that we have such a low batting average in testing drugs that we think should slow or stop the disease but when actually tested show disappointing results. What I can tell you is that most likely exercise dose help PD, and perhaps it even slows disease progression. As to what type of exercise is the best, the one that you can stick with, that you enjoy, that you can do on a daily basis (preferably for 1 hour each day throughout the year), that is safe, that does not put you at undue risk for falls, that your heart and body can tolerate, is the best exercise. We have reason to believe that the more aerobic, and the one that promotes symmetry and extension (more than flexion), the better. Yours,_________________Hubert H. Fernandez

Posted: Fri Jan 04, 2008 5:09 pm Post subject: Is exercise harmful?Can exercise worsen PD progression?

I refer to the above articles. It is my dry mouth, a common symptoms of Parkinson’s patient that I feel tiredness from exercises. My saliva that seems thick or stringy in my mouth. I have cracked lips at the corners of the mouth. I some time find difficulty to talk because of my rough, dry mouth or tongue. I have a bad breath. TEOKIMHOE

Posted: Sun Jan 06, 2008 9:10 am Post subject:

The dry mouth could also be medications (anticholinergics) and occassionally people have another disorder (Sjogren’s, or another) so you may want to discuss options with your local doctor. Good luck._________________Michael S. Okun, M.D

Nutrients and Parkinson’s

However I still believe when you exercise more you need more nutrients to protect yourself from oxidative stress whether you are athletics or not.Because of increasing energy production in the cell (from some medicine, exercise or stress, etc ) will increase free radicals production as well, this is the natural biological process in the body.But regular exercising will increase endogenous antioxidant enzyme that enhance antioxidant mechanism in the overall. The aging process, antioxidant level and oxidative stress are dynamic process which we have to monitor every 6 months or every year at least i.e blood test on your nutrient level.I understand most PD patients have deficiencies or decreasing of antioxidants, frolic acid and Vitamin B 12 or 6 and these deficiencies occur in old adult too. To improve your nutrient level in natural and safe way mean you have more fruits, vegetables and fish ( source of Co enzyme Q 10.)Kindly advise.

I would like to know if you all request blood tests and urine tests when you go to the doctor or does he tell you it’s time? My family doctor seemed to question my need for frequent blood work and I was really thinking more in the every three month field for blood and every 6 weeks for urine. I really think if I didn’t mention it he wouldn’t bring it up,,,,,,,POKIE
Mark this post as helpful

My neuro has never done a blood test, or any other diagnostics, other than visually observing my symptoms, and what I tell him. (I tell him I can’t take a blood test until I’ve had time to study for it). I see him quarterly, which is a good timeframe. My neuro medicates me as little as possible to achieve results. For me, “less is more”, and I am actually better now than a year ago, many of my symptoms having either lessened or disappeared completely, especially the memory , motivation, and cognitive issues, in large part due to the info about nutrients and supplements I found through this forum. Everyone who sees me now says I am “my old self” again, the ‘GO-TO” person for just about anything my friends or family or co-workers need. Of course my way is not for everyone, we all have different health issues to deal with, along with well-meaning family and friends who often don’t understand, and say the wrong things. I am one of those who is a pro-active “self-healer” in both body and mind, only seeing docs for real emergencies, which is usually once every two years, not for every little pain that comes along, and ignoring the doubters and naysayers with their negative or pessimistic comments . Everyone told me it’s “too hard” to lose weight. I found a doc who specializes in weight loss, and so far by following his program of appetite supression meds, diet, and exercise, I have lost 28 pounds (as weighed at the clinic) in one month, my waist going from 42 inches to 38 inches. I have 23 pounds to go to get back to my pre-pd weight. I HAVE TO GO NOW, WILL BE INSTALLING NEW LIGHT FIXTURES, SANDING AND REFINISHING AN OLD CHINA CABINET, AND RUNNING A NEW TV CABLE LINE AT MY IN-LAWS HOUSE. GOOD LUCK, AND DON’T LET THE NAYSAYERS DRAG YOU ticky

I am so proud of you but be careful. In 96 I was on the diet drug of the time. I can’t recall the name but my best friend is a RN and I had lost almost 50 lbs ask me to quit taking it. Something about it scared her. I stopped and 14 days later had a grand mal seizure. She swears the diet meds played a part, I don’t think so…….Just be careful, if you start getting flu like symtoms don’t just right it of to the flu get to a doctor even if it’s not in your once every two year thing……….love ya …

early parkinson’s patient

Early parkinson’s patient

fully aware that the early stage of PD patient does not accept that he has symptoms of PD even have been diagnosed by doctors.. He treats it as an aging process as the result the patient end up with Parkinson’s progression. Besides Parkinson’s has symptoms with other related diseases and some doctors wrongly diagnosed as an age aging process. I am one of the sufferer’s. It takes me four years to be treated as Parkinson’s patient. I am fortunate that my PD is slow progression.as I do daily exercises far ahead for changes of my body.movement. The late Parkinson’s treatment aggravates the sickness further and could not to be normal and enjoy good quality life. Therefore a good start to tackling health issues is to understand the diseases themselves. As an early PD patient I experience emotional disorders - anxiety,depression, apathy, uncertainties and stress. : I have fear as follows:- When do I tell others, and what do I say? Whether to tell ” is a question posed by many people in the early stage of PD disease. 1. Is it jeopardize my job? Don’t let other people feel sorry for me and for my wife and children? 2. Keep it yourself as secret and privacy and once it reveals you feel sorry as you cannot take it back. 3. I feel relieve as I tell out and I could get some support. 4. It is hard to keep it secret as PD is a not ‘ going on “disease and the tension of hiding it. 5. It helps more people to aware the diseases and encourage more set up support group and seminars i.e fund raising for the poor patients and learn to manage and overcome the disease and feel you are not alone. TEO KIM HOE

You bring up many thoughts, upon dx you either accept what your Neurologistssays or go for another opinion. Then you do research and read what ever reliable sources you can. By trying to understand the disease is the only way one can accept it. Do we tell others? I feel only if it makes you feel more comfortable in doing so, they may see symptoms you have that you don’t even realize are seen by others. But above all tell your family & loved ones it is only fair, let them deal with it how ever they choose. You will find most people do not know that much about the disease and are most often surprised how the disease affects so many parts of our body. Deean

Shoe and Balance

Shoes and Balance? Posted: Tue Oct 16, 2007 4:25 am Post subject: Hi I have Parkinson’s for two years. I am taking my medication i.e 12 mg Requip per day for the past of six months and it increases my agility’s doing my physical exercises at gym. I do yoga, body combat, pump and spinning in class for hourly. I do not have difficulties as you have mention. Anyway it is individual. As for the shoes I suggest putting on “MBT” it helps you walk upright and swing your arm whilst go jogging

What does MBT mean?? Sorry for being so dense, teokimhoe. I stopped wearing jogging shoes just as soon as I was diagnosed. I changed to walking shoes, as suggested in some of the early research I did on the net about living with Parkinson’s.

I have been battling lately to find a Sunday shoe that did not make my balance worse. I haven’t worn even a small heel for years, long before I was diagnosed, but even dressy flats were giving me more problems than I wanted. I didn’t want to wear the athletic walking shoes to church with dressy pants suits, but for the longest couldn’t find an alternative. Then I found some Skechers sneakers that fit perfectly and I like the looks. They are lace up, with suede and leather sections, and don’t really look like athletic shoes. But they have helped my balance considerably on Sundays, and for that I am grateful.

Mark this post as helpful

Masked face

People with masked faces is a signal for neurological conditions and emotions disorder People with masked faces is expressionless appearance of individuals with disorder . There are ways to diminish masked faces as follows:1 MST training (muscle strength training) for people with masked faces to improve respiratory strength and mobility of muscle around the mouth.2. Blowing air into a balloon help to relax your stiffness and rigidity of muscle around your mouth.3. Gargle yourself with water in your throat and blow air through it without swallowing it ,by twisting your head left and right, up and down to increases your facial muscle strength to relieve and improve people with problems of respiratory and swallowing

Thanks so much, I shall be trying those excercises, that is the one thing I miss the most is my smile. Please don’t laugh the reason is; one is always greeted by the smile on the person face as you meet them so you have a tendency to smile back. Many a friendly chat has been the results a friendly smile. A number of years before I was dx my children would say SMILE mom when taking my picture I would say I am trying to. Never realized there was no smile, I loved walking down the street smiling because life was great never totally realized they saw my smile and now I miss it.

phlegm and cough

Teo, phlegm and cough, and other respiratory troubles are side effects of Levodopa therapy.

Neck And shoulders?

I get a stiff neck especially when I am at the computer. An Ibuprofen and a hot bath work wonders.

Jack

 I suffer with my neck and shoulders; however, lately I find it has been a while since it has bothered me….but the rest of my body has been in what I term a “flair up”

When my neck and shoulders are bad I have a homemade sewn cloth bag filled with flax seed a neighbor gave me that I put in the microwave and heat up and lay across my shoulders..in other words heat seems to help calm the muscles when they spasm….it even seems to help my legs/calves when they flair up, which seems to be often lately

Pray

, thank you for sharing what has helped you!  Very good advice!  I am so sorry to hear about your depression….I will pray for you dear friend.

I am trying to focus on others, rather than myself.  It is very hard right now as I am in so much physical pain since falling & injuring my tail bone.  I am dealing with both PD & this injury.  The pain from my tail bone is so hard to deal with.  I can’t bend or move without extreme pain.

I need your prayers to be strong!
Thank you for caring!