HeroTeo - The Parkinson’s Fighter

Chronicles of A Parkinson’s Fighter

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Physical therapy important for PD patients

The traditional view of how to treat people with

neurodegenerative conditions is that exercise has little

or no effect, or that it can actually worsen the disease!

However, recent research in both humans and

animal models suggests that physical therapy — including

gait and balance training with external cues

to improve walking, resistance training for the lower

extremity muscles, balance training, and regular exercise

— can be an important component of an exercise

programthatmay help improve or hold the signs

and symptoms of Parkinson’s disease (PD) at bay.

Gait and Balance

Gait and balance impairments are cardinal symptoms

of PD. If left untreated, impairment in walking

or balance can lead to falls, fractures, hospitalization

and loss of independence. In fact, roughly 40 percent

of nursing home admissions are preceded by a fall,

and falls occurmore frequently in people with Parkinson’s

than they do among other individuals.

Recently, a large number of studies have focused

on improving gait in peoplewith Parkinson’s through a

training exercise known as “cueing.” People with PD

sometimes have difficulty generating internal cues to

take a step. Theymay “freeze” while standing or walking,

which in turn can cause falls and injuries. External

cues, such as providing a cane to trigger a stepping

movement, placing horizontal lines on the floor, giving

instructional cues (such as asking the person to “take

long steps”) or walking to a rhythmicmetronome, can

all improve a person’s stride length and walking velocity,

and reduce shuffling and freezing.

In one such study — cueing training was used to

improve walking in participants’ home environments.

The results, thoughmodest, showedmeasurable improvements

in gait and balance, as well as reduced

freezing and greater confidence to carry out functional

activities. However, after the training ended,

the improvements were gradually lost, reminding us

that it is important to continue exercising if those improvements

are to be long lasting.

Recent research has also suggested that a person

with PD needs to exaggerate his or her effort (amplitude)

of movement for it to have the same impact of

normal movement in a person without PD.

Improving Strength

Studies have generally shown that exercise improves

speech and swallowing, posture, tremor, dexterity,

cognition and depression. Other studies have

shown that treadmill training, and lower extremity resistance

and balance training, can be effective at improving

muscle strength, gait and balance.

There has been considerable interest recently in

therapies designed to increase muscle mass, known

as “muscle hypertrophy.” Several studies have shown

that individuals who improved the size of their muscles

also demonstrated improvements in functional

activities such as climbing or descending stairs or balancing.

Muscles shrink when they are not used; conversely,

muscle tissue increases in girth with intense

resistance training. As we age, we often become

more sedentary and muscle loss becomes inevitable

— underscoring the need for exercise.

In the late 1980s, studies began to show that older

adults—many already in their 80s and 90s, and some

of them in nursing homes—could improve strength,

muscle bulk and function in response to high-intensity

resistance training. Despite this evidence — and

because some researchers and therapists believed

that resistance training might itself increase muscle

stiffness—strengthening was not advised for people

with PD out of fear that it might be harmful.

More recent studies have further challenged this

view. Results of one study of people with mid-stage

Parkinson’s suggest that high-intensity resistance

training results in a six percent increase inmuscle volume,

17 percent improvement on how far participants

could walk in six minutes, and a 22 percent and 13

percent improvement in stair descent and ascent

time. In another study, high-intensity resistance training

for the lower extremity muscles was found to im-

Question and answer

I have heard of Parkinson’s Disease. I don’t understand how you get it. I was told you are born with it. Is this true and how do you know if you have it or not?
(anonymous)

Hide Answer

A:

At this time, we really don’t know if one is “born” with Parkinson’s disease
or becomes affected with it as he grows older. One theory suggests that some people are born with fewer dopamine-producing cells (either genetically
or that there is some problem during pregnancy - such as trauma or a virus -
which contributes to being born with fewer dopamine-producing cells). Then,
as the individual ages and naturally loses cells, this person would pass
the 80% dopaminergic neuronal loss that is needed before PD symptoms appear. Other theories suggest some sort of environmental insult causing the drop in
dopamine cells. Unfortunately, we just don’t know yet as these are theories
that must either be proven or disproven via research.

How do you know you have Parkinson’s disease? The best way is to consult a
neurologist who specializes in movement disorders. Neurology, while a
specialty itself, is split into sub-specialties. Parkinson’s disease is a
movement disorder so one who has additional training in movement
disorders, and thus sees primarily patients with such movement disorders, is the best type of physician to consult for a diagnosis.

Why I am not the same?

Have been looking for something I wrote about PD and Depression several years ago and fouond this.  I gave copies of this to several of my friends to try to make them  understand why I am not always the same person they knew.  Hope it will help some of you.  (Since I did NOT write it originally, you do not need to ask my permission to copy it for your friends.) 

I hope this will help some that are having problems with
family,friends, co-workers or who ever that needs a little help
understanding what we go through having PD.

have Parkinson’s disease. It is not contagious. No one
knows what causes it, but some of the dopamine cells in the brain
begin to die at an accelerated rate. Everyone slowly loses some
dopamine cells as the grow older. If the cells suddenly begin to die
at a faster rate, Parkinson’s disease develops. It is a slowly
progressive disease usually occurring as people get older. Medicine
can help. I’ll take newer, stronger kinds over the years. Some make
me sick and take lots of adjustments. Stick with me. I have good days
and bad days.

Emotions: Sometimes I cry and appear to be upset and you think you
have done something to hurt my feelings. Probably not. It is the
Parkinson’s Keep talking to me. Ignore the tears. I’ll be ok in a few
minutes.

Tremors: You are expecting me to shake. Maybe I do, maybe I don’t.
Medicine today takes care of the tremors. If my hands, feet, or head
are shaky, ignore it. I’ll sit on my hands or put them in my pockets.
Treat me as you always have. What’s a little shakiness between
friends.

My face: You think you don’t entertain me anymore because I’m not
grinning or laughing. If I appear to stare at you, or have a wooden
expression, that’s the Parkinson’s I hear you. I have the same
intelligence, it just isn’t easy to show facial expressions. If
swallowing, I may drool. This bothers me, so I will mop it up.

Stiffness: We are ready to go somewhere and I get up. I can hardly
move. Maybe my medicine is wearing off. The stiffness or rigidity is
part of Parkinson’s Let me take my time, keep talking.

Exercise: I need to walk each day. Two to three miles is good. Walk
with me. Company makes walking fun. It may be a slow walk, but I’ll
get there. Remind me if I slump or stoop. I don’t always know I’m
doing this. My stretching, bending, exercises must be done everyday.
Help me with them if you can.

My voice: As my deeper tones disappear, you’ll notice my voice is
getting higher and wispy. That’s the Parkinson’s I know you can talk
louder, faster and finish my sentences for me. I don’t care for that.
Let me talk, get my thoughts together and speak for myself. I’m still
there. My mind’s okay. Since I’m slower in movement, my thoughts are
slower too. I want to be part of the conversation. Let me speak.

Sleeplessness: I may complain that I can’t sleep. If I wander around
in them middle of the night, that’s Parkinson’s It has nothing to do
with what I ate or how early I went to bed. I may nap during the day.
Let me sleep when I can. I can’t always control when I’m tired or
feel like sleeping. Be patient, my friends. I need you. I’m the same
person, I’ve just slowed down. It’s not easy to talk about
Parkinson’s, but I’ll try if you really want to know. I need my
friends. I want to continue to be part of life. Please remain my
friend.

Author Unknown

Dry/blurred eye

 People living with Parkinson’s often have trouble with their eyes

Parkinson’s disease can short-circuit nerve signals between your eyes and your brain. It can so impair the muscles and nerves that control eye movement.

I have dry /blurred eyes without tears that caused my eye tired easily and sensitivity to light when I driving or reading.

To alleviate eye problems I use more light when you read besides I use tears eye drop daily

Dry eyes are caused by a lack of tears. Tears are necessary for the normal lubrication of your eyes and to wash away particles and foreign bodies.

It’s hard to distinguish between Parkinson’s disease-related eye problems and natural, age-related changes in vision

Depression and exercise

People with depression may be one of the first symptoms of  parkinson’s diseases, a disorders nervous systerm (lack of dopamine in your brain cell), a voluntary movement disorders

Depression is a serious medical illness that involves the brain. Whilst depression can sometimes go away, in many cases it can continue for a long period of time affecting enery levels, productiviy aned close relationship.

There  are nearly twice as likely to develop Parkinson’s disease for those who were  taking antidepressants.

It increases your high blood pressure and causes insomina, sleepless, stress,vivid dreaming, anxiety, depression,slurred speech,  loss of taste which are part of emotional disorder of parkinson’s.

Exercises, medication, diet and supplements are the way to release you depression.
Activiate your exercise daily help you to reduce/ease  your depression besides medication  and diet .

Exercise regularly reduces your risk of stroke in many ways.

It can lower your blood pressure, increase your level of HDL cholesterol, and improve the overall health of your blood vessels and heart.

It also helps you lose weight and control diabetes, and can reduce stress.
Gradually work up to 30 to 45 minutes of activity — such as walking, jogging, swimming or bicycling .

Research has shown that regular exercise benefits people with Parkinson’s disease. Exercise reduces stiffness and improves mobility, posture, balance and gait. Exercise may also reduce depression also.

I have depression for the past of 20 years before I was diagnosed as Parkinson’s disease.

My symptoms:

Sadness,Loss of interest or pleasure in activities you used to enjoy,Change in weight,Difficulty sleeping or oversleeping,Energy loss,Feelings of worthlessness,Thoughts of death or suicide.

I am on antidepressants

Yoga and exercise

I have exercises in the gym i.e body pump, body combat, spinning, cardio, box and kick execises

I consider Yoga has most benefits for parkinson’s patient.Yoga is a mind, mood and soul exercises. It orginating from India two thousand ago and been technically scientific and modified by western into one of the physical exercise that promote mind,mood and spirit.

Parkinson’s disease is a movement and non movement disorder’s; learning Yoga as a tool to combat the diseases. It teaches you on how to relief your muscle stiffness, rigidity and stretching as well as twisting your hip bones and seat bone either standing and seating to uplifting your stoop postures. Yoga strenthen your muscle and increase mobility in jointsIt also aids patients in relaxation and have a disability and are struggling with managing your body or symptoms yoga could be a very good choice.
It also teaches you relaxation techniques on how to cool down and relief your anxieties, depression, insomina , and temper which are most helpful for parkinson’s patient and provide strength to handle other troubles that beset you.. It is also a discipline improve your emotional and spiritual health as well.Yoga is becoming an increasingly popular means of relieving pain and increasing comfort for people with many different types of disabilities. Many patients practice adaptive yoga, which takes into consideration a patients wants and concerns as well as their limitations. Those with multiple sclerosis, sports injuries, fibromyalgia, post-surgical conditions, Parkinson’s disease, stroke, arthritis, or simply a very sedentary lifestyle have been helped by doing yoga.

Sex and parkinson’s

 

I have a PD patient and taking PD medication for two years. I was told by his wife he is changing his lifestyle by sleeping naked on bed and has sex every night. He starts doing beauty care i.e facial and body massage, manicure and pedicure two times a week and putting on new clothes to be young at heart. He is fun on looking beautiful girls He is taking sinemet 25/100 one in every four hours. Is it side effect of the medicine? Is it aging process

talk about sex…because having any chronic condition is bound to affect a relationship on both a physical and emotional level. Both partners in a couple whose lives have been affected by Parkinson’s disease need to understand the disease and its progression in order to cope with any difficulties which may arise in their sex life.

Many of the symptoms associated with Parkinson’s disease are thought to be caused by lowered levels of dopamine in the brain - a chemical that transmits messages from the brain’s “relay center” to its nerve cells, enabling physical movement. It is possible that the dopamine decrease may also cause a lessened drive or interest in sex

http://www.webmd.com/parkinsons-disease/parkinsons-sexual-problems

strengthen your core muscle helpful for parkinson’s

Parkinson’s disease is a movement disorders disease. It is also a neurological voluntary movement disorders  that causes trembling, stiffness of the limbs, and impaired balance and coordinatio

Cultivate the strength of core muscle are helpful for Parkinson’s patients. It is also good for sport and fitness routines as well as for daily life.

They monitor and corridinate our body movement smoothly and orderly. Practice deep breathing for core stabilization besides other exercises regularly working together to strengthen and coordinate  are important. These muscles work together to support your spine. When you strengthen your core, you gain greater balance,power and stability.

Therefore,  building your core strength is important for  your  better posture, balance, power  and speed, may protect you from  lower   back pain and less likely fall.

In  short core stability benefits everyone, from older people to top professional athletes.

Deep breathing  exercises for core stabilization should be part of every conditioning program, along with flexibility, strength, and aerobic training.

The core muscles are the muscles in the abdomen, lower back, and pelvis lie roughly between the rib cage and the hips

There are exercise to do strengthen your core muscle;abdomen, lower back, and pelvis ,lie roughly between the rib cage and the hips.

I do deep breathing in yoga, and  weight liftling classes to breath in my abdomen, pelivi  and breath out my lower back   to strengthen my core muscle, speed and stamina. The deep breathing exercises are helpful for me for better  posture,speed, p0wer,balance and stability.

You will feel tired easily for the first times by using three core muscles to stabilize your movement and strength  at times during  exercises. However they strenghten your immune function and endurance .Learning to relax at time during exercise relief your tiredness, depression and anxiety/

Gene and Parkinson’s

People with Parkinson’s disease commonly suffer a slowing or freezing of movement caused by the death of neurons that make dopamine, a key chemical that allows brain cells to send and receive messages essential to voluntary movements.Patients regain the ability to move, seemingly miraculously, by taking L-DOPA or related drugs that mimic the missing dopamine. After a few years on L-DOPA, however, most patients again lose motor control — but in an opposite way. Instead of too little, there is too much movement, like involuntary nodding and rocking — side effects known as L-DOPA-induced dyskinesias.

“L-DOPA-induced dyskinesias are a major problem for patients, and there is a great need to help with these drug side effects,” said MIT Institute Professor Ann Graybiel, a prominent Parkinson’s researcher at the McGovern Institute for Brain Research at MIT.

Graybiel and her colleagues have identified two molecules whose expression in the brain is altered in the brains of animals with L-DOPA-induced dyskinesias. The results may lead to new approaches to the treatment of dyskinesias in Parkinson’s patients, of which there are more than 1 million in the United States alone.

“We’re very excited because these genes are concentrated in precisely the places that lose dopamine in Parkinson’s disease, so they might be reasonable targets to go after therapeutically,” Graybiel said. 

The two related genes, named CalDAG-GEFI and CalDAG-GEFII, which are believed to be involved in signaling inside neurons, are expressed in the striatum, a brain structure essential for the control of movement and the main target of the dopamine-containing nerve tract that degenerates in Parkinson’s disease.

In a rat model of Parkinson’s disease, the two genes showed opposite changes when the animals were treated with L-DOPA. CalDAG-GEFI showed decreased expression while CalDAG-GEFII was increased.

“Moreover, the changes in the rat brain were proportional to the severity of the drug-induced dyskinesias. The more exaggerated the movements, the greater the dysregulation of these genes,” said first author Jill Crittenden, a research scientist in the Graybiel Lab.

These CalDAG-GEF genes are thought to work by controlling the activity of other important signaling molecules (Ras, Rap and ERK) that are expressed in many different parts of the body and have many different biological functions. Other labs have shown that inhibiting Ras or ERK in animal models of dyskinesias prevents these involuntary movements.

“But because Ras and ERK do so many things, they are not promising drug targets because blocking them would probably have many unwanted effects,” Crittenden said. “Because the CalDAG-GEF molecules control ERK and because they are so enriched in the very part of the brain that controls these involuntary movements, regulating them could have therapeutic value for dyskinesia without causing other problems.”

This research was published Jan. 26 in the advance online issue of Proceedings of the National Academy of Sciences.

This study was funded by the Stanley H. and Sheila G. Sydney Fund, the National Institutes of Health, National Institute of Child Health and Human Development and the National Parkinson Foundation. Coauthors Ippolita Canturi-Castelvetri, Lauren Kett and Anne Young (Massachusetts General Hospital); Esen Saka (Hacettepe University, Turkey); Christine Keller-McGandy and Ledia Hernandez (MIT); and David Standaert (University of Alabama, Birmington) contributed to this study.


Adapted from materials provided by Massachusetts Institute of Technology, via EurekAlert!, a service of AAAS.

Do your eye blinking?

Joined: 03 Mar 2007
Posts: 120
Location: Malaysia
PostPosted: Sat Jan 17, 2009 3:01 am    Post subject: Do your  eye blinking? Reply with quote

Parkinson’s disease does not affect the eyes’ ability to see but there can be some eye-related concern.Due to the mask-like face that some patients can experience, there can be a decreased rate of automatic blinking .Though Eye movement disorders do not always cause functional problem many people as they age may not bother.However,lack of eye coordination, people experience double vision when looking in certain direction. Some people who have this problem do not complain of double vision, but say that their eyes tire quickly when they readMy eyes feel tired easily and I use eye tears to drop my eyes few times a day as I have decreased rate of automatic blinking. I find difficulty driving car at night or rainy day.It could  help by patching one eye  to ease the problems of double vision.
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to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families