HeroTeo - The Parkinson’s Fighter

Living with PD by Dr Kathrynne

Dear Doctor,

I feel proud I come out with the book Heroteo- the chronicles of a parkinson’s fighter.

while living with PD . The proceed of sales to the Malayan parkinson society.My objective is to raise

the awareness the disease to the public and support group. The accomplishments for me are demonstrated to the sufferers that they are not alone.

As Asian are shy with the disease they prefer to stay home. They do not live with quality of life.

They do not shopping, travelling, eating what western do. They have poor knowledge of PD.

As Parkinson’s have emotional and non emotional disorders and there are so far no cure treatment they have to learn how to slow down the disease by taking actively in public and joining forums to enlighten their knowledge of PD to slow down the disease.

TEOKIMHOE

to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families
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#2 Kathrynne Holden, MS

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22-January 07 Locationwww.nutritionucanlivewith.com Posted Yesterday, 06:23 PM

Mr. Teo, I certainly wish you well in your endeavors, and in your admirable goal to raise awareness of PD in Malaysia. I hope your book will help to achieve this very worthy objective, and that others will be inspired by your example.

Best regards,

Kathrynne Holden,

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nutrition,vitamin and parkinson’s
Nutrition are importance for those with Parkinson Disease. Nutrition won’t cure PD or slow its progression.

There are vitamins and mineral at certain level are harmful for Parkinson’s Patients especially Folic Acid, Chromium,Copper, Ferritin,Magnessium,Selerium,Zinc and vitamin B6.

Therefore doctor who prescribes vitamins for PD has to routinely monitor them. Some of them may be good for general health and well being but not have been definitively proven to help PD. CoQ10 and creatine are currently under study. We will know about these two drugs very soon. But for the rest, they have not been proven.

I have once blood test to measure my vitamin level in Add Life Anti Aging Bangkok. I have suffered low blood pressure by taking some of the vitamins. As the result I admitted to Hospital. I have T.I.A (mini stroke) still yet to answer.

Regards

TeoKimHoe

to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families

#2   Kathrynne Holden, MS 

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Posted Today, 06:31 PM

Thank you for your comments. I would be interested in seeing the studies on these supplements with relation to low blood pressure, if you care to send them.

Best regards,

Kathrynne Holden, MS

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knowledge is power

Dear Doctors,

Do any PD medications slow down the disease?
I started with Q 10 when I diagnosed as Parkinson’s last five years old.

It is not the parkinson’s medication but a supplements as some doctors prescribe for an early parkinson’s patient.

I take Sinemet regular on the third years when my movement is slow. I increase Requip medication and improve my movement after six months. Besides I take vitamin and supplements daily as I do blood test on my vitamin and mineral level twice in a year.

Diet, nutrition and exercises are important too .

I wish to thank NPF Forum and medical Panel that I learn and share with the readers on how to battle the diseases.

All are in one to slow down the parkinson’s. Discipline, perservation, consistance on yourself are the power to battle the parkinson’s as It is a chronic disease and expensive for treatment

TEOKIMHOE

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#2 Kathrynne Holden, MS

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22-January 07 Locationwww.nutritionucanlivewith.com Posted Today, 06:16 PM

Indeed knowledge is power. So far as I am aware, no PD medications have been definitely proven to slow the progression of disease. There are studies underway on various supplements, including CoQ10, and when we have the results, we will certainly post them to the forums.

Best regards,

Kathrynne Holden, MS

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CPK Blood Test

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03-March 07 LocationMalaysia Posted Today, 03:55 AM

Dear Dr.Okun,

My cardiac enzymes CPK is 288 level.

What is the normal/higher CPK level?

Is anxiety and depression affected your higher level of CPK?

Kindly elaborate

Regards

TEOKIMHOE

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#2 Dr. Okun

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19-January 07 LocationUniversity of Florida Posted Today, 06:32 AM

I will post for you as this is not my area of expertise.

The CK must be interpreted by an internist or cardiologist and there are fractions that indicate the type of muscle breakdown. In many cases elevations of a few hundred are normal, but you need to see an internist or cardiologist to be sure. When CK’s get into the thousands it can be dangerous, and in some cases it heralds muscle disease. I will post for you.

Michael S. Okun, M.D.

Dear Dr.Okun,

What is the cause of CPK at high level?

How it to be prevented?

The internist or cardiologist still yet to answer.

Regards

TEOKIMHOE

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#4 Dr. Okun

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19-January 07 LocationUniversity of Florida Posted Today, 06:18 AM

Here is a link to medline plus where the enzyme test is explained.

http://www.nlm.nih.g…icle/003503.htm

Michael S. Okun,

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urination

I have experienced a lack control as far as urination’s concern. Firstly, when I am in the midst of urinating, I am unable to hold back or stop halfway through. Secondly, when I feel the need to urinate I must go to the toilet immediately. I will not be able to hold back at all. I have seen Urologist and was told my PSA is normal though I have slight enlarged prostate gland. My medication: one dose Harnal 400 mcg taken before bedtime daily.

Questions:

Any side effect with parkinson’s medication Sinemet, Jumax and requip by causing low blood pressure and dizzinness?

Any alternative

Regards

TEOKIMHOE

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#2 Dr. Okun

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19-January 07 LocationUniversity of Florida Posted Today, 06:30 AM

Many PD patients have these symptoms and sometimes they are PD, sometimes urological, and sometimes anxiety. I  will post for comments from others.

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Soft voice, slurred speech and masked face

Parkinson’s patients have difficulty with voice and speech. We have shortness of breath. We don’t speak loud enough. Our speech is almost unintelligible. Our face is expressionless (”poker-face”), so people thought we are not interested or unhappy, even though that is not truly how we feel.

In order to solve these problems, there are ways to improve the muscles around the mouth:

•Use tongue in your mouth to massage the muscles around the mouth.
•Gargle with water full on your throat and blow air through it without swallowing, twist your mouth to the extreme left, right, up and down, to strengthen the facial muscles.
•Blow air deeply into balloon to exercise the muscles around the mouth

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Soft voice, slurred speech and masked face

Parkinson’s patients have difficulty with voice and speech. We have shortness of breath. We don’t speak loud enough. Our speech is almost unintelligible. Our face is expressionless (”poker-face”), so people thought we are not interested or unhappy, even though that is not truly how we feel.

In order to solve these problems, there are ways to improve the muscles around the mouth:

•Use tongue in your mouth to massage the muscles around the mouth.
•Gargle with water full on your throat and blow air through it without swallowing, twist your mouth to the extreme left, right, up and down, to strengthen the facial muscles.
•Blow air deeply into balloon to exercise the muscles around the mouth

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http://www.wrongdiagnosis.com/p/parkinsons_disease/misdiag.htm 

Misdiagnosis of PD leading to death

PD leading  to death

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Dry eye By Dr,Kathrynne

I use to have dry eyes and facial masked. I look tired and my eyes are dry.

I have tried eye drops but it is still dry and look tired.

Recently my eyes specialist inserted eye plug into my both eye and treated my problem.

I started smile and look energetic at all time.

Temporary or permanent silicone plugs can be inserted in the lacrimal (tear) drainage ducts in your eyelids to keep tears on your eye from draining away as quickly. Called lacrimal plugs or punctal plugs, they can be inserted painlessly while you’re in the eye doctor’s office and normally are not felt once inserted

Regards

TEOKIMHOE

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#2 Kathrynne Holden, MS

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22-January 07 Locationwww.nutritionucanlivewith.com Posted 24 August 2010 - 10:01 AM

Dear Mr. Teo,
Thank you for this interesting observation. Dry eyes are not uncommon, particularly as we age; and also among those with PD. This is something that people may want to discuss with their doctors.

Best regards,

Kathrynne Holden, MS

Posted by teo at 10:11

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My article

Thank you Teo that was an interesting article Mr. Loyd Tan was most certainly a devoted man to his religion, Family and the Parkinson group in Malaysia.

Teo you are also a busy man helping your friends and doing what you can to educate your people about Parkinson, I am sure you are appreciated.

The best of Health to you and your Family,

Deeann

HiDeeann,

Thank yu for your encouragement.

I find it is difficulty to deal people with PD unless there are changes on attitude that PD is an age aging disease and no treatment to be cured. In fact PD can be slow down by medication, exercises and positive on the disease that yu are not alone. In Topic: Is it dehydration or others?>
Posted 16 Aug 2010

Kathrynne Holden, MS, on 11 August 2010 - 05:20 PM, said:

Dear Mr. Teo,
It sounds like you got dizzy suddenly, and certainly dehydration could be a possibility. Dehydration is not uncommon when traveling, as it is often harder to remember to drink enough fluids.

If you were at an altitude higher than at home, this could also cause such dizziness. Higher altitudes mean there is less oxygen available, and until your body adapts, it can result in weakness, shortness of breath, or dizziness.

Medications for PD can also cause dizziness, and possibly being in a new climate, combined with the medications, caused your sudden weakness. If the new climate was warmer, or colder, than you are used to, that could make a difference.

I would discuss this with your doctor, who is in a much better position to give you the personal direction you require.

,

Dear Dr. Kathrynne,

Thank you for your advise.

In fact dehydration is prevented if I have to rest at home a few days instead I go outdoor in the heated weather in order to adapt the changes of the climate from Cold to HOT.

As I was outdoor shopping in the winter I did not feel thirsty and less drinking for the past of three weeks from London,Paris,Rome and Spain.
Besides there were at different altitude when I flying back. I was from Higher altitudes to low and there is less oxygen available, and until your body adapts, it can result in weakness, shortness of breath, or dizziness.

Regards

TEOKIMHOE Comments

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