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hot soup with sugar contents

 

  

 

Anonymous

Posted: Sun Feb 28, 2010 6:43 pm Post subject: hot soup with sugar contents and parkinson’s

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I am quite irritable for taking hot soup with sugar contents as it some times chokes in my throat and swallows uncomfortable.

However, it is normal for taking hot soup without sugar contents.

Kindly elaborate

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Dr. Okun

Joined: 19 Jan 2007
Posts: 251
Location: University of Florida
Posted: Mon Mar 01, 2010 7:37 am Post subject:

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This is variable patient to patient and I would recommend you do what works for you. If you have eating or swallowing issues a speech pathology consult is a great idea.
_________________

shaking of fingers

PostPosted: Sun Feb 28, 2010 6:52 pm    Post subject: shaking fingers and parkinson’s Reply with quote

It is quite irritable both my hand second and third fingers are shaking whenever I am sitting in the cold airconditioned resturant.It is mild and well managed.

Kindly elaborate

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Dr. Okun
Joined: 19 Jan 2007
Posts: 251
Location: University of Florida

PostPosted: Mon Mar 01, 2010 7:38 am    Post subject: Reply with quote

Stress, anxiety, changes in environment can all worsen PD symptoms. As long as you feel ok I wouldn’t worry about it! Not sure if that is what you were asking.
_________________
Michael S. Okun, M.D.

Sex Life

Posted: Fri Feb 26, 2010 10:39 am Post subject: Sex Life

——————————————————————————–

I know a 65 years old parkinson’s patient who developed hypersexuality after he was treated with Pramipexole, a dopamine agonist. For the first time in his life, he slept naked. He had sex every night which was something unusal for him.

His behavious has also changed. He has become obsessed with his personnel look - he went to facial and body message regualarly, and bought new clothes to feel young at heart. Whenever he went out to town, he enjoyed staring at beautiful girls.

Are these symptoms the sideeffect of Pramipexole ? I heard that dopamine agonists have been linked to extreme behaviour such as hypersexuality

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Dr. Fernandez

Joined: 20 Jan 2007
Posts: 90

Posted: Sat Feb 27, 2010 10:55 am Post subject:

——————————————————————————–

Yes, this is most likely a side effect of pramipexole. Having said that, there are a few things that I need to mention:

1) All PD drugs can cause this, except it occurs in higher prevalence with dopamine agonists (such as pramipexole) compared to the class of PD drugs.

2) This is a rare side effect (less than 8 percent will experience this).

3) The effect goes away almost immediately if you discontinue the medication.

So, the most important thing is not to avoid the medication (as it really is a good drug for most patients), but to be aware of the potential side effects and to immediately inform your doctor if this occurs.

Yours,

shoes and balance

Sue2Barb

Joined: 12 Mar 2007
Posts: 12

Posted: Wed Mar 14, 2007 2:18 pm Post subject: Re: Shoes and Balance

——————————————————————————–

Hi-

I’m new to the forum and have been diagnosed for 2 years. Just started Requip.

If someone is having trouble with balance and eliptical sway I’ve found some negative heel shoes that help. They help with posture,too, if you tip forward. (The shoes aren’t being marketed with this emphasis because of the current legal environment.) Check it out at www.earth.us They have jogging shoes and everyday shoes.

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marie jonson

Joined: 01 Mar 2007
Posts: 75

Posted: Thu Mar 15, 2007 3:26 am Post subject:

——————————————————————————–

Hi! and welcome to the forum. Thanks for posting that website re earth shoes–very interesting! Think I’ll check into them — so do you have a pair, and do you like them? Were they hard to get used to?

Kind regards, Marie
from BC, Canada

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Sue2Barb

Joined: 12 Mar 2007
Posts: 12

Posted: Thu Mar 15, 2007 12:48 pm Post subject: re: Earth Shoes

——————————————————————————–

marie jonson wrote:
Hi! and welcome to the forum. Thanks for posting that website re earth shoes–very interesting! Think I’ll check into them — so do you have a pair, and do you like them? Were they hard to get used to?

Kind regards, Marie
from BC, Canada

Hello from North Carolina, Marie. Yes, all I buy are Earth Shoes, now. They make me feel solid on my feet. I have the Energetic jogging shoes, the Pirouette 2 mary janes and some sandles. I called and told their marketing man how the shoes helped me. He already had seen PWP walk better in them and knew. They don’t want to make medical claims for the shoes tho, he said. Too much of a legal hassle these days. Pity!

Best regards,
Barb

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gailzr

Joined: 12 Mar 2007
Posts: 10

Posted: Fri Mar 16, 2007 2:26 am Post subject: earth shoes

——————————————————————————–

thanks for the info….i have been using SAS shoes;they are deep and very comfy. Two years ago I had a spinal fusion and laminectomy and couldn’t walk. It took months AND i COULDN’T FIND SHOES THAT FIT. mY FEET WERE A SIZE 10 W;NOW AN 8 WIDE. SO HERE I COME EARTH SHOES ..THANKS

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Sue2Barb

Joined: 12 Mar 2007
Posts: 12

Posted: Mon Mar 19, 2007 4:48 pm Post subject: Re: earth shoes

——————————————————————————–

gailzr wrote:
thanks for the info….i have been using SAS shoes;they are deep and very comfy. Two years ago I had a spinal fusion and laminectomy and couldn’t walk. It took months AND i COULDN’T FIND SHOES THAT FIT. mY FEET WERE A SIZE 10 W;NOW AN 8 WIDE. SO HERE I COME EARTH SHOES ..THANKS

Hi–Some of the Earth shoes do come in WIDE, not too many. They are marked special in the catalogue. I hope you find them helpful.

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Sue2Barb

Joined: 12 Mar 2007
Posts: 12

Posted: Sat Apr 14, 2007 12:07 pm Post subject: Wider Shoes-For gailzr

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There’s a new style jogging shoe in Earth shoes that’s wider, cooler, lighter weight. It’s called “Rocket” and has more toe room, too. The B width seems extra wide to me. (Just got a pair.) You might like them. The www.Earth.us company has been good about exchanges and returns, so far, anyway. Wondering if the Earth shoes did you any good,…

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Franky65

Joined: 15 Oct 2007
Posts: 2

Posted: Mon Oct 15, 2007 7:48 pm Post subject: Hi

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I wear the nike pegasus shoe.ihave worn this shoe for years because it has been good for me and i believe as long as a shoe is doing the job you should ignore the rating charts and stay with who brung you to the dance.however, there are points that a person needs to know before buying a pair of shoes.1.sizing a shoe you need a thumbs width between the end of the toe and the end of the shoe.2.the shoe should bend where your foot bends.if it does not and you have break the shoe down,this will tire the lower leg out rather quick and effect your running.3.the shoe should fit the contour of your foot.4.your body weight might determine if you need a soft or firm shoe.5.if a person pronates or supanates,in other words if the foot rolls in or out you need a firm shoe or one with a lacing system or wedge that would prevent the foot from rolling.if you find a shoe that meets this needs and you have had success and enjoy your running stay with the shoe

———————-
Clarks & DC Shoes

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teokimhoe

Joined: 03 Mar 2007
Posts: 159
Location: Malaysia
Posted: Tue Oct 16, 2007 4:25 am Post subject: Hi

——————————————————————————–

I have parkinson’s for two years.

I am taking my medication i.e 12 mg Requip per day for the past of six months and it increases my agilities doing my physical exercises at gym. I do yoga, body combat, pump and spinning in class for hourly.

I do not have difficulties as you have mention. Anyway it is individual.

As for the shoes I suggest putting on “MBT” it helps you walk upright and swing your arm whilst go jogging.

TEOKIMHOE
_________________
to help the PD patients aware the diseases and encourage to set up support groups to educate the patients and their immediate families

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bishion

Joined: 23 Feb 2010
Posts: 5
Location: New York
Posted: Tue Feb 23, 2010 2:42 am Post subject: MBT shoes

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I do think MBT shoes are the best choice.
MBT is famous for “the world’s smallest gym,” MBT anti-shoes take the philosophy that typical shoes don’t reflect the actual world we walk in. As we all know, the world is dishearteningly uneven, most shoes are flatter to keep the feet and our body blance.This is to solve the problem from the surface.But what the MBT attempt to do is improve one’s coordination and strength so that in turn the stress on the joints and spine can be lessened.

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PatientsLikeMe forum

Guest race2cure 
(guest)

Just wanted to let you know that based on what I’ve read from your posts and profile, you seem to have an extremely positive and healthy attitude towards PD, and quite frankly I simply wanted to thank you.

I am currently doing research for a project related to raising awareness for PD around the world, and ultimately increasing support to find a cure NOW.  Your views and perspective on staying fit, exercising, and maintaining a positive attitude while learning all that you can about the illness are all quite inspiring, and I truly feel that people like you are both leaders and role models in a supportive community of PwPs.

Thank you so much for your words and posts in the forum, you have taught me, personally, and hopefully others as well, and I wish you the absolute best in continuing to let people know that they are not alone.

Thanks again and God bless!

yours truly,

Thomas

blood pressure and dizziness

PostPosted: Sat Jan 23, 2010 10:52 am    Post subject: climate changes and blood pressure Reply with quote

climate changes and blood pressureI was on three weeks holiday in Europe recently.It is winter in Europe and am flying from tropicial country, Malaysia.I have low blood pressure due to sideeffect with Parkinson’s
medication.I do not have problem during my stay in Europe as I put on enough winter cloth to protect the cold and to warm up our body blood pressure,

The airline compartment is heated against the cold during the journey.

I enjoyed gym exercise at the fitness centre,,steam bath and sauna during the stay..

I have problem on the scecond day after I fly back from Europe.

I feel dizzinness at the taxic backseat after comming back from shopping and I could not stand and feel unstable, as the result I knelt down my body with conscious

In the flying flight they lower down the heated temp. and we have to take down our winter cloth to lower down our body temperature.

Kindly advise

I

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Dr. Fernandez
Joined: 20 Jan 2007
Posts: 90
PostPosted: Mon Jan 25, 2010 1:29 pm    Post subject: Reply with quote

I am not particularly sure if climate really has an effect on PD.I practiced for 5 years in the Northeast, now I have been practicing in the Southeast in the last 6 years or so, and I don’t see much difference. I also don’s really notice if my patients get better or worse in the summer as compared to winter.When people travel though, it can affect their PD…diet change, routine change, timezone changes which therefore affect sleep patterns are all factors that play a role. My best advice is to keep your routine as much as possible. Adjust to the weather and the new time zone as fast as you can and keep your meal times as consistent as possible.Consistency is the key.Yours,
_________________
Hubert H. Fernandez

Warm weather can lower your blood pressure due to increased sweating (loss of fluid from the body) and dilatation (engorgement) of the blood vessels under the skin. The low blood pressure can explain your dizziness and fainting spell. Furthermore, the pooling of blood under your skin diverts the blood from your brain, leading to reduced oxygen supply to the brain.
 
The Parkinson’s medications also have a role to play in your dizziness because they lower the blood pressure.
 
At the moment, I think there is no need to change your Parkinson’s medications. Just remember to drink more fluids the next time you return from european countries.  
 
Dr Chew

parkinson’s guideline

li9m://www.parkinsonsvic.org.au/publications/newly-diagnosed%20.pdf

Hero Teo – the atypical Parkinson’s patient

Hero Teo – the atypical Parkinson’s patient

It has been well documented in the literature that Parkinson’s is associated with a certain type of personality. They tend to be “introverted” and “self-controlled”. In my own experience, I have also observed such “Parkinson’s personality”. Due to their submissive nature, Parkinson’s patients are the most pleasant and obedient patients whom I have treated in my clinic. In general, they are not outgoing. Most of the time, their daily activities are confined to their home, and they keep a distance from the society.

It is difficult to determine the exact origin of the Parkinson’s personality – it could be the direct manifestation of the illness, the reaction to the physical disabilities or society (social stigma). Some researchers have even suggested that it the characteristic personality of Parkinson’s patients that has predisposed to the illness (i.e. increased the risk of getting Parkinson’s).

However, this “Parkinson’s personality” rule certainly does not apply to all patients. I personally know a very small number of Parkinson’s who are pleasant, submissive but very outgoing. These exceptional Parkinson’s patients have even reached out to the whole society, while declaring their illness openly to the whole world. In fact, the existence of such “atypical Parkinson’s personality” is a blessing for the Parkinson’s community, as these “atypical” Parkinson’s patients have overcome the social stigma and brought revolutionary changes to the Parkinson’s care in this country.

So far, I have met three such “atypical” but remarkable Parkinson’s patients. You have heard of the heroic stories of the late Mr. Lloyd Tan and Mr. Chee Liew Seong, who have been the key players in the history of Parkinson’s support group movement in Malaysia. The very fact that Mr. Lloyd Tan was subsequently discovered to have parkinsonism-plus syndrome, a much more severe illness than Parkinson’s, made his personality even much more remarkable.

The third hero of the Malaysian Parkinson’s community is Mr. Teo Kim Hoe, 71, who is much better known as “Hero Teo”.

“As far back as 1998, he was already noticed to have slowness of movement, and a hunched back with his head bent downwards (stooped posture). Even at that moment, his relatives had commented that the way he walked was different from previously – he had a tendency to walk on his toes. Once, my daughters and I were looking for him at a shopping centre. He walked right past us without noticing us at all, as his head was bent downwards. That was how we knew something was not right about him. But, we did not have any clue about what he was suffering from,” recalled Mrs. Teo.

Mr. Teo was diagnosed to have Parkinson’s in 2005. He was already on some Parkinson’s medications when I first met him in 2006. At this moment, his symptoms were fairly well-controlled. It was during this first meeting when I discovered that he had an inherited form of Parkinson’s, which is generally rare in this region. He has a total of eight siblings, two of whom also suffer from Parkinson’s.

Right from the first time I met him, I had noticed some remarkable characteristics in him. The most obvious was his strong optimism in coping with his illness. Just like other Parkinson’s patients, Mr. Teo has experienced many complications such as dizziness due to low blood pressure, insomnia and nightmares. Last year, he was admitted to my hospital for sudden onset of slurring of speech, dizziness and limb weakness. The brain scan confirmed that he had suffered from stroke. Despite this, he persevered and recovered completely within one week. His “never-say-die” attitude has helped him to pull through all these complications.

Another unique characteristic of Mr. Teo is his openness in facing his illness. With the help of his son-in-law, he started his personal blog (“Hero Teo – Chronicles of a PD fighter” - www.heroteo.ikonxept.com) in 2005. In fact, Mr. Teo is the first Malaysian Parkinson’s patient (and the only one) who has started a blog.

In his blog, Mr. Teo has described his illness in a very illustrative and comprehensive manner - almost every aspect of Parkinson’s is included. Despite not having any medical qualification, he has discussed many medical issues which are considered to be difficult for the general public. Once, he sent me an email, asking me about non-motor symptoms of Parkinson’s, something no Parkinson’s patient has ever discussed with me.

When I asked him why he decided to set up a blog, he said, “I have always wanted to tell the world how I fight my Parkinson’s. By creating a blog, I hope to send a strong message to all the readers that there are people suffering from Parkinson’s who need the support of the general public. Malaysians need to be aware of the existence of Parkinson’s, and its physical, emotional and mental complications. Through this blog, I can share my experience on how I cope with and understand my illness.”

“Don’t you worry about revealing your illness to the whole world? I am sure that you know about the social stigma associated with Parkinson’s, and the prejudice that people might have against you,” I asked.

“Even though I have Parkinson’s, I don’t consider myself to be a disabled person. I know that nowadays we have effective treatment for Parkinson’s which can help me attain a fairly good quality of life. Furthermore, by revealing my illness to other people, it enables them to understand and help me solve my problems. These are the reasons why I don’t feel embarrassed to tell the whole world that I have Parkinson’s,” he replied.

I have to admit that I was amazed and impressed by his reply. The truth is, the negative perception of Parkinson’s patients towards their own illness is one of the reasons that contribute to the social stigma. Many Parkinson’s patients consider themselves to be disabled or physically inferior, even before they face the general pubic. Coupled with the wrong perception of the general public about Parkinson’s, the social stigma of Parkinson’s is intensified. In other words, the Parkinson’s patients’ own perception of illness does have a significant influence on their long-term well being and social life.

Throughout all these years, Mr. Teo was the very first Parkinson’s patient who has a very “physical” approach in coping with the illness. I have met many Parkinson’s patients who are involved in relatively light physical exercise programs such as Tai-chi and Wai-dan-gong. In contrast, Mr. Teo attends a much more strenuous physical exercise program for five days in a week at a local health centre. During each session, which lasts about 3-4 hours, he carries out all sorts of exercise programs such as muscle stretching, running on treadmill, balancing exercise on “fit-ball”, kick-boxing and spinning (i.e. stationary cycling). He even hired an instructor to teach him Yoga twice a week at home. In fact, I have never met any Parkinson’s patient who is so aggressive in carrying out physical exercises.

“I believe that in addition to the Parkinson’s medications, complementary treatment such as physical exercise is also useful in maintaining good muscle tone, strength and posture. This is why I have hired two trainers to help me with my exercise program,” commented Mr. Teo.

Even today, Mr. Teo is still physically fit, despite his age and having Parkinson’s for ten years. As I write this article, Mr. Teo and his wife are preparing for a holiday I Hong Kong. In fact, he has been traveling to many countries over the past few years, such as Thailand, Singapore and Australia. I am glad that he is making the best out of his old days.
Don’t mess with me – Mr. Teo doing his kick-boxing exercise

I have to admit that my personal experience in treating Mr. Teo over the past two years has been really special and encouraging. At least I know that there is a minority of Parkinson’s patients who are different from the rest, and attempted to make life better for the others.

Mr. Lloyd Tan, Mr. Chee Liew Seong and Mr. Teo Kim Hoe are the heroes of the Malaysian Parkinson’s community.

Posted by teo at 8:31 PM

It has been well documented in the literature that Parkinson’s is associated with a certain type of personality. They tend to be “introverted” and “self-controlled”. In my own experience, I have also observed such “Parkinson’s personality”. Due to their submissive nature, Parkinson’s patients are the most pleasant and obedient patients whom I have treated in my clinic. In general, they are not outgoing. Most of the time, their daily activities are confined to their home, and they keep a distance from the society.

It is difficult to determine the exact origin of the Parkinson’s personality – it could be the direct manifestation of the illness, the reaction to the physical disabilities or society (social stigma). Some researchers have even suggested that it the characteristic personality of Parkinson’s patients that has predisposed to the illness (i.e. increased the risk of getting Parkinson’s).

However, this “Parkinson’s personality” rule certainly does not apply to all patients. I personally know a very small number of Parkinson’s who are pleasant, submissive but very outgoing. These exceptional Parkinson’s patients have even reached out to the whole society, while declaring their illness openly to the whole world. In fact, the existence of such “atypical Parkinson’s personality” is a blessing for the Parkinson’s community, as these “atypical” Parkinson’s patients have overcome the social stigma and brought revolutionary changes to the Parkinson’s care in this country.

So far, I have met three such “atypical” but remarkable Parkinson’s patients. You have heard of the heroic stories of the late Mr. Lloyd Tan and Mr. Chee Liew Seong, who have been the key players in the history of Parkinson’s support group movement in Malaysia. The very fact that Mr. Lloyd Tan was subsequently discovered to have parkinsonism-plus syndrome, a much more severe illness than Parkinson’s, made his personality even much more remarkable.

The third hero of the Malaysian Parkinson’s community is Mr. Teo Kim Hoe, 71, who is much better known as “Hero Teo”.

“As far back as 1998, he was already noticed to have slowness of movement, and a hunched back with his head bent downwards (stooped posture). Even at that moment, his relatives had commented that the way he walked was different from previously – he had a tendency to walk on his toes. Once, my daughters and I were looking for him at a shopping centre. He walked right past us without noticing us at all, as his head was bent downwards. That was how we knew something was not right about him. But, we did not have any clue about what he was suffering from,” recalled Mrs. Teo.

Mr. Teo was diagnosed to have Parkinson’s in 2005. He was already on some Parkinson’s medications when I first met him in 2006. At this moment, his symptoms were fairly well-controlled. It was during this first meeting when I discovered that he had an inherited form of Parkinson’s, which is generally rare in this region. He has a total of eight siblings, two of whom also suffer from Parkinson’s.

Right from the first time I met him, I had noticed some remarkable characteristics in him. The most obvious was his strong optimism in coping with his illness. Just like other Parkinson’s patients, Mr. Teo has experienced many complications such as dizziness due to low blood pressure, insomnia and nightmares. Last year, he was admitted to my hospital for sudden onset of slurring of speech, dizziness and limb weakness. The brain scan confirmed that he had suffered from stroke. Despite this, he persevered and recovered completely within one week. His “never-say-die” attitude has helped him to pull through all these complications.

Another unique characteristic of Mr. Teo is his openness in facing his illness. With the help of his son-in-law, he started his personal blog (“Hero Teo – Chronicles of a PD fighter” - www.heroteo.ikonxept.com) in 2005. In fact, Mr. Teo is the first Malaysian Parkinson’s patient (and the only one) who has started a blog.

In his blog, Mr. Teo has described his illness in a very illustrative and comprehensive manner - almost every aspect of Parkinson’s is included. Despite not having any medical qualification, he has discussed many medical issues which are considered to be difficult for the general public. Once, he sent me an email, asking me about non-motor symptoms of Parkinson’s, something no Parkinson’s patient has ever discussed with me.

When I asked him why he decided to set up a blog, he said, “I have always wanted to tell the world how I fight my Parkinson’s. By creating a blog, I hope to send a strong message to all the readers that there are people suffering from Parkinson’s who need the support of the general public. Malaysians need to be aware of the existence of Parkinson’s, and its physical, emotional and mental complications. Through this blog, I can share my experience on how I cope with and understand my illness.”

“Don’t you worry about revealing your illness to the whole world? I am sure that you know about the social stigma associated with Parkinson’s, and the prejudice that people might have against you,” I asked.

“Even though I have Parkinson’s, I don’t consider myself to be a disabled person. I know that nowadays we have effective treatment for Parkinson’s which can help me attain a fairly good quality of life. Furthermore, by revealing my illness to other people, it enables them to understand and help me solve my problems. These are the reasons why I don’t feel embarrassed to tell the whole world that I have Parkinson’s,” he replied.

I have to admit that I was amazed and impressed by his reply. The truth is, the negative perception of Parkinson’s patients towards their own illness is one of the reasons that contribute to the social stigma. Many Parkinson’s patients consider themselves to be disabled or physically inferior, even before they face the general pubic. Coupled with the wrong perception of the general public about Parkinson’s, the social stigma of Parkinson’s is intensified. In other words, the Parkinson’s patients’ own perception of illness does have a significant influence on their long-term well being and social life.

Throughout all these years, Mr. Teo was the very first Parkinson’s patient who has a very “physical” approach in coping with the illness. I have met many Parkinson’s patients who are involved in relatively light physical exercise programs such as Tai-chi and Wai-dan-gong. In contrast, Mr. Teo attends a much more strenuous physical exercise program for five days in a week at a local health centre. During each session, which lasts about 3-4 hours, he carries out all sorts of exercise programs such as muscle stretching, running on treadmill, balancing exercise on “fit-ball”, kick-boxing and spinning (i.e. stationary cycling). He even hired an instructor to teach him Yoga twice a week at home. In fact, I have never met any Parkinson’s patient who is so aggressive in carrying out physical exercises.

“I believe that in addition to the Parkinson’s medications, complementary treatment such as physical exercise is also useful in maintaining good muscle tone, strength and posture. This is why I have hired two trainers to help me with my exercise program,” commented Mr. Teo.

Even today, Mr. Teo is still physically fit, despite his age and having Parkinson’s for ten years. As I write this article, Mr. Teo and his wife are preparing for a holiday I Hong Kong. In fact, he has been traveling to many countries over the past few years, such as Thailand, Singapore and Australia. I am glad that he is making the best out of his old days.
Don’t mess with me – Mr. Teo doing his kick-boxing exercise

I have to admit that my personal experience in treating Mr. Teo over the past two years has been really special and encouraging. At least I know that there is a minority of Parkinson’s patients who are different from the rest, and attempted to make life better for the others.

Mr. Lloyd Tan, Mr. Chee Liew Seong and Mr. Teo Kim Hoe are the heroes of the Malaysian Parkinson’s community.

Posted by teo at 8:31 PM

climate changes and blood pressure

PostPosted: Wed Jan 20, 2010 6:41 am Post subject: climate changes and blood pressure Reply with quote
I was on three weeks holiday in Europe recently.

It is winter in Europe and am flying from tropicial country, Malaysia.

I have low blood pressure due to sideeffect with Parkinson’s
medication.

I do not have problem during my stay in Europe.

I have problem on the second day when I fly back from Europe as I feel dizzinness and fainted after comming back from shopping.

Kindly advise

I
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Kathrynne Holden, MS

Joined: 22 Jan 2007
Posts: 94
Location: www.nutritionucanlivewith.com

PostPosted: Thu Jan 21, 2010 3:43 pm Post subject: Reply with quote
.
Dear Friend,

I am not certain that the dizziness was due to the climate change.

Although that might be the case, I think it is more likely that perhaps you might have been experiencing some other concern, such as dehydration. With low blood pressure, it is important to drink plenty of fluids to build up the blood volume as much as possible; and travel can change our habits, schedules, and the way we normally eat and drink. If you had not been drinking as much fluid as usual, I think that would be a more likely cause of the blood pressure drop than the climate change.

However, I suggest you address your question to “Ask the Doctor,” as they may have other information they would like to suggest.
_________________
Best regards,
Kathrynne Holden, MS

For a Parkinson Tip of the Day visit:
http://www.nutritionucanlivewith.com/
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Tips and Pointers on Some Parkinson’s Symptoms

Tips and Pointers on Some Parkinson’s Symptoms

Soft voice, slurred speech and masked face

Parkinson’s patients have difficulty with voice and speech. We have shortness of breath. We don’t speak loud enough. Our speech is almost unintelligible. Our face is expressionless (”poker-face”), so people thought we are not interested or unhappy, even though that is not truly how we feel.

In order to solve these problems, there are ways to improve the muscles around the mouth:

  • Use tongue in your mouth to massage the muscles around the mouth.
  • Gargle with water full on your throat and blow air through it without swallowing, twist your mouth to the extreme left, right, up and down, to strengthen the facial muscles.
  • Blow air deeply into balloon to exercise the muscles around the mouth.

Do it 3 to 4 times a day.

Small (micro) handwriting

As our Parkinson’s progresses, our handwriting becomes smaller and unrecognisable. The bank had trouble recognising my signature on the cheques that I issued. Often, the bank had to call me to verify that I had indeed issued those cheques. Once, I even had to go to the Commissioner for Oaths to authenticate a document that was signed by me.

In order to solve this problem, I have relegated all signing of cheques to my wife.

Unstable walking posture

Due to our weak and stiff muscles, Parkinson’s patients have an unstable walking posture, hence, often resulting in falls, which cause bone fractures or concussions.

I would like to share my experience in discovering that one of the reasons for my unstable walking posture was that both my arms were rigid (not swinging) while walking.

I tried to correct it and make it a habit to swing both arms when walking, in order to give a better balance for my body.

Besides doing arms stretching, walking upright and swinging the arms, I go down to the swimming pool’s shallow end (3 feet depth) in order to immerse my body below the surface of the water and massage my own body muscles for half an hour daily, accompanied by a helper in case I need help.

Make it a habit and you will enjoy a good quality of life.

Muscle cramps

I have frequent muscle cramps, stiffness, tightness and pain on my hips, thighs, shins, ankles, hamstrings (tendons behind the knees), cheeks, shoulders and neck for the past of 20 years, before I was even diagnosed with Parkinson’s. It comes and goes a few times a day, either when walking, standing or seated.

I used to go for physio-therapy and massage. Now, I realised that the muscle cramps are caused by the disorders in my nervous system, due to the lack of dopamine. Dopamine is a neurotransmitter, a type of chemical that helps messages travel between nerve cells, including our brain cells. Brain cells need dopamine to send messages to other parts of our brain, and to nerve cells and muscles throughout our body. With the lack of dopamine, messages were not transmitted adequately, causing my body muscle movements to be disrupted and not running smoothly. Hence, the muscle cramps developed. Muscle cramps are also caused by reasons other than Parkinson’s.

To solve the problem of frequent muscle cramps, I do the following:
· Take the optimal dosage of Parkinson’s medications to supply the much-needed dopamine to the brain cells.
· Do physical exercises at least 2 hours daily.
· Have a healthy diet.
· Have proper intake of supplementary nutrition.
· Have a body massage once a week to stretch my neck, back, arms and legs up and down, left and right.
· Place a hot/cold pack on the affected muscles to ease the pain from the cramps.
· On my own at home, I also stretch my legs. I place one leg against the wall in order to stretch my leg up and down, front and back, 20 times for each leg. I do this many times daily.

Hamstring pains

Muscle pains are common in Parkinson’s. I have hamstring (tendon behind my knee) pains and have difficulty standing on my right leg. I find it difficult to do the “tree posture” in yoga, when I have stand on one leg. I am fortunate that I have no problem with the other leg (left).

In order to solve the hamstring pains, I place one leg against the wall in order to stretch my leg up and down, front and back, 20 times for each leg. I do this many times daily.

After stretching, I place hot/cold pack on the hamstring and joints. Besides that, I ensure that I take optimal dosage of medications, have a healthy diet and have proper supplementary nutrition.

Difficulty swallowing

Chew a piece of chewing gum or hard candy in the mouth to encourage swallowing. Use sugarless gum or candy so as not to cause tooth decay. It is also helpful to stop drooling and dry mouth. It also maintains a good oral health.

It is cheap and has no side effects.

Eye problems

Parkinson’s does not affect the eyes’ ability to see but there can be some eye-related concerns. Due to the problem of masked (stiff) face in Parkinson’s, there can be a decreased rate of automatic blinking. There could also be a lack of eye coordination due to the motor (physical) disorder symptoms, causing double vision when looking in a certain direction. I have these eye problems. As a result, my eyes feel tired easily and I cannot see clearly when driving at night or during rainy days.

I use eye drops a few times a day and I avoid driving at night or during rainy days.

Dehydration

I suffer from dehydration. It is a side effect of levodopa and the dopamine agonist medications for Parkinson’s. Dehydration is a loss or deficiency of water in our body tissues. This condition may result from inadequate water intake and/or excessive removal of water from the body, i.e. from sweating, vomiting or diarrhoea.

Symptoms include great thirst, nausea and exhaustion. Thirst leads to dehydration. In order to prevent and solve the problem with dehydration, I do the following:
· Drink two litres of water daily, as I am doing strenuous physical exercises daily.
· Apply “Biotane” gel to moisturise my dry lips.
· Chew “Biotane” gum to minimise dryness in my mouth.
· Use “Biotane” mouth wash to minimise rough and sticky tongue.

Anxiety, depression and stress

Due to death of neurons that make dopamine, Parkinson’s have non-motor (mental) disorder symptoms, such as anxiety, depression, tension, stress and insomnia. Side effects of medications could also give rise to these symptoms.

Unknown to most Parkinson’s patients, non-motor disorder symptoms are even more complicated and difficult to treat than the motor (physical) disorder symptoms. It affects the feelings and moods of the Parkinson’s patients and the entire family. I have had my share of mental problems that caused upheavals and tears in my family. You can read the story written by my son-in-law in the inset panel.

This is how I relieve my mental disorders:
· Concentrate on other issues and pastimes that I enjoy or have interests in.
· Indulge in physical exercises, which is very effective for me because:
- I am able to let out the pent-up frustrations and anger inside me;
- I am able to feel totally relaxed, through a deep breathing technique.
· Study the Bible and get involved in the church activities.
· Take medicines at the optimal dosage in order to counter the Parkinson’s symptoms and the effects of emotional disorders.
· Have the attitude that I am not alone and that there is still life after Parkinson’s.
· Giving and serving others will bring more happiness than receiving and being served.
· Participate in online discussion forums with other fellow Parkinson’s patients and medical practitioners, such as PatientsLikeMe, National Parkinson’s Foundation (NPF) and Parkinson’s Discussion Forum (PDF).

The deep breathing technique (to feel relaxed) is achieved from strengthening the core (body trunk) muscle:

  • While doing physical exercises, inhale and exhale deeply, with the stomach tucked in and out according to rhythm of breathing.
  • The core muscle lies roughly between the rib cage and the hips, in the abdomen, lower back and pelvis. A strong core muscle protects the spine and straightens our body posture. Our exercise movements become more powerful, stable, balanced and coordinated and we will not fall down easily.

In short, we can use the technique above in all exercises in order to deal with our overall health, both mentally and physically, because when we feel relaxed while doing our physical exercises, it becomes more effective and fulfilling. Some examples of exercises which incorporate deep breathing are tai chi, yoga, pilates, running and cycling.

When not doing exercises, we can also do deep breathing, anywhere and at any time:

  • Take 5 to 10 deep breaths in and out slowly (to a count of 5 each time), while relaxing your body.
  • At the same time, pick one word or phrase (some people call it a “mantra”) to repeat as you breathe in, and again as you breathe out. It helps you to concentrate on your breathing, and distracts you from the stressful situation.

The basic benefit of this type of breathing is, more oxygen gets into your body and will improve your ability to think clearly, thus helping you to cope better with the situation at hand.

3 people marked this post as helpful.

Soft voice, slurred speech and masked face

Parkinson’s patients have difficulty with voice and speech. We have shortness of breath. We don’t speak loud enough. Our speech is almost unintelligible. Our face is expressionless (”poker-face”), so people thought we are not interested or unhappy, even though that is not truly how we feel.

In order to solve these problems, there are ways to improve the muscles around the mouth:

  • Use tongue in your mouth to massage the muscles around the mouth.
  • Gargle with water full on your throat and blow air through it without swallowing, twist your mouth to the extreme left, right, up and down, to strengthen the facial muscles.
  • Blow air deeply into balloon to exercise the muscles around the mouth.

Do it 3 to 4 times a day.

Small (micro) handwriting

As our Parkinson’s progresses, our handwriting becomes smaller and unrecognisable. The bank had trouble recognising my signature on the cheques that I issued. Often, the bank had to call me to verify that I had indeed issued those cheques. Once, I even had to go to the Commissioner for Oaths to authenticate a document that was signed by me.

In order to solve this problem, I have relegated all signing of cheques to my wife.

Unstable walking posture

Due to our weak and stiff muscles, Parkinson’s patients have an unstable walking posture, hence, often resulting in falls, which cause bone fractures or concussions.

I would like to share my experience in discovering that one of the reasons for my unstable walking posture was that both my arms were rigid (not swinging) while walking.

I tried to correct it and make it a habit to swing both arms when walking, in order to give a better balance for my body.

Besides doing arms stretching, walking upright and swinging the arms, I go down to the swimming pool’s shallow end (3 feet depth) in order to immerse my body below the surface of the water and massage my own body muscles for half an hour daily, accompanied by a helper in case I need help.

Make it a habit and you will enjoy a good quality of life.

Muscle cramps

I have frequent muscle cramps, stiffness, tightness and pain on my hips, thighs, shins, ankles, hamstrings (tendons behind the knees), cheeks, shoulders and neck for the past of 20 years, before I was even diagnosed with Parkinson’s. It comes and goes a few times a day, either when walking, standing or seated.

I used to go for physio-therapy and massage. Now, I realised that the muscle cramps are caused by the disorders in my nervous system, due to the lack of dopamine. Dopamine is a neurotransmitter, a type of chemical that helps messages travel between nerve cells, including our brain cells. Brain cells need dopamine to send messages to other parts of our brain, and to nerve cells and muscles throughout our body. With the lack of dopamine, messages were not transmitted adequately, causing my body muscle movements to be disrupted and not running smoothly. Hence, the muscle cramps developed. Muscle cramps are also caused by reasons other than Parkinson’s.

To solve the problem of frequent muscle cramps, I do the following:
· Take the optimal dosage of Parkinson’s medications to supply the much-needed dopamine to the brain cells.
· Do physical exercises at least 2 hours daily.
· Have a healthy diet.
· Have proper intake of supplementary nutrition.
· Have a body massage once a week to stretch my neck, back, arms and legs up and down, left and right.
· Place a hot/cold pack on the affected muscles to ease the pain from the cramps.
· On my own at home, I also stretch my legs. I place one leg against the wall in order to stretch my leg up and down, front and back, 20 times for each leg. I do this many times daily.

Hamstring pains

Muscle pains are common in Parkinson’s. I have hamstring (tendon behind my knee) pains and have difficulty standing on my right leg. I find it difficult to do the “tree posture” in yoga, when I have stand on one leg. I am fortunate that I have no problem with the other leg (left).

In order to solve the hamstring pains, I place one leg against the wall in order to stretch my leg up and down, front and back, 20 times for each leg. I do this many times daily.

After stretching, I place hot/cold pack on the hamstring and joints. Besides that, I ensure that I take optimal dosage of medications, have a healthy diet and have proper supplementary nutrition.

Difficulty swallowing

Chew a piece of chewing gum or hard candy in the mouth to encourage swallowing. Use sugarless gum or candy so as not to cause tooth decay. It is also helpful to stop drooling and dry mouth. It also maintains a good oral health.

It is cheap and has no side effects.

Eye problems

Parkinson’s does not affect the eyes’ ability to see but there can be some eye-related concerns. Due to the problem of masked (stiff) face in Parkinson’s, there can be a decreased rate of automatic blinking. There could also be a lack of eye coordination due to the motor (physical) disorder symptoms, causing double vision when looking in a certain direction. I have these eye problems. As a result, my eyes feel tired easily and I cannot see clearly when driving at night or during rainy days.

I use eye drops a few times a day and I avoid driving at night or during rainy days.

Dehydration

I suffer from dehydration. It is a side effect of levodopa and the dopamine agonist medications for Parkinson’s. Dehydration is a loss or deficiency of water in our body tissues. This condition may result from inadequate water intake and/or excessive removal of water from the body, i.e. from sweating, vomiting or diarrhoea.

Symptoms include great thirst, nausea and exhaustion. Thirst leads to dehydration. In order to prevent and solve the problem with dehydration, I do the following:
· Drink two litres of water daily, as I am doing strenuous physical exercises daily.
· Apply “Biotane” gel to moisturise my dry lips.
· Chew “Biotane” gum to minimise dryness in my mouth.
· Use “Biotane” mouth wash to minimise rough and sticky tongue.

Anxiety, depression and stress

Due to death of neurons that make dopamine, Parkinson’s have non-motor (mental) disorder symptoms, such as anxiety, depression, tension, stress and insomnia. Side effects of medications could also give rise to these symptoms.

Unknown to most Parkinson’s patients, non-motor disorder symptoms are even more complicated and difficult to treat than the motor (physical) disorder symptoms. It affects the feelings and moods of the Parkinson’s patients and the entire family. I have had my share of mental problems that caused upheavals and tears in my family. You can read the story written by my son-in-law in the inset panel.

This is how I relieve my mental disorders:
· Concentrate on other issues and pastimes that I enjoy or have interests in.
· Indulge in physical exercises, which is very effective for me because:
- I am able to let out the pent-up frustrations and anger inside me;
- I am able to feel totally relaxed, through a deep breathing technique.
· Study the Bible and get involved in the church activities.
· Take medicines at the optimal dosage in order to counter the Parkinson’s symptoms and the effects of emotional disorders.
· Have the attitude that I am not alone and that there is still life after Parkinson’s.
· Giving and serving others will bring more happiness than receiving and being served.
· Participate in online discussion forums with other fellow Parkinson’s patients and medical practitioners, such as PatientsLikeMe, National Parkinson’s Foundation (NPF) and Parkinson’s Discussion Forum (PDF).

The deep breathing technique (to feel relaxed) is achieved from strengthening the core (body trunk) muscle:

  • While doing physical exercises, inhale and exhale deeply, with the stomach tucked in and out according to rhythm of breathing.
  • The core muscle lies roughly between the rib cage and the hips, in the abdomen, lower back and pelvis. A strong core muscle protects the spine and straightens our body posture. Our exercise movements become more powerful, stable, balanced and coordinated and we will not fall down easily.

In short, we can use the technique above in all exercises in order to deal with our overall health, both mentally and physically, because when we feel relaxed while doing our physical exercises, it becomes more effective and fulfilling. Some examples of exercises which incorporate deep breathing are tai chi, yoga, pilates, running and cycling.

When not doing exercises, we can also do deep breathing, anywhere and at any time:

  • Take 5 to 10 deep breaths in and out slowly (to a count of 5 each time), while relaxing your body.
  • At the same time, pick one word or phrase (some people call it a “mantra”) to repeat as you breathe in, and again as you breathe out. It helps you to concentrate on your breathing, and distracts you from the stressful situation.

The basic benefit of this type of breathing is, more oxygen gets into your body and will improve your ability to think clearly, thus helping you to cope better with the situation at hand.

3 people marked this post as helpful.